Sickle Cell Workshop – 14th & 15th December 2019
A two day workshop on Clinical, Epidemiological, and Psychosocial issues in Sickle Cell Disease was held on 14th & 15th December at Surgical Complex Auditorium, Indira Gandhi Government Medical College, Nagpur. The collaborative partners were:
- Global Health Unit, Boston University
- Lata Medical Research Foundation, Nagpur
- AMS
- VAPM
- Alumni Association, IGGMC
- Sickle Cell Association, Nagpur (Org. Secretary: Dr. A. V. Shrikhande)
The schedule of the workshop was as follows.
Day 1
| Registration & Breakfast - 8:30 A.M - 9:00 A.M | ||
|---|---|---|
| Welcome Address | 9:00 A.M.- 9:30 A.M. | |
| Theme 1-Importance of Cohort in Sickle Cell Disease in India Chairperson – Dr.Sushma Thakre 9:30 A.M. - 10:30 A.M.( 2 min Introduciton of speaker) |
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| 1. Cohort Studies – Methodology and biases | 20 minute | Dr.Meenal Patwardhan |
| 2. What have we learnt from the Jamaican Cohort Model? | 20 minute | Dr.Meenal Patwardhan |
| 3. What have we learnt from the Indian Cohort Model? | 20 minute | Dr.Dipty Jain |
| Tea Break - 10:30 A.M - 11:00 A.M. | ||
| Theme 2- Relevance of RCT’s in Sickle Cell Disease Chairperson – VL Gupta 11:00 A.M – 12:30 P.M |
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| 1. How do RCT’s contribute to management decisions? | 30 minute | Dr.Meenal Patwardhan |
| 2. RCT’s in use of Hydroxyurea. | 30 minute | Madam Nafisa Halim |
| 3. Indian RCT experience in use of Hydroxyurea. | 30 minute | Dr.Gohokar, Dr. Vinod Gandhi |
| 4. Panel Discussion - Evidence from Cohort Studies for Pain and Infection Management in Children | 12:30 P.M - 01:30 P.M | Moderator: Dr. Archana Patel Panel: Madam Nafisa Halim, Dr. Meenal Patwardhan, Dr. Dipty Jain, Dr. Balwant Khobragade, Dr. V. Gandhi, Dr. Gohokar, Dr. Kane. |
| 5. Felicitation of Padmashree Dr. S.L.Kate Sir | 1:30 P.M. -2:00 P.M | |
| Lunch -2:00 P.M. – 2:30 P.M | ||
| Theme 3 - Pain, Infection and Hydroxyurea Management | ||
| 6.Debate on use of Hydroxyurea in sickle cell disease | 2:00 P.M.- 3:30 P.M | Moderator: Dr. Anuradha Shrikhande For: Dr. Dipty Jain, Dr. Riya Ballikar, Dr. Manoj Bhatnagar Against: Dr. Kane, Dr. Gohokar |
| 7. Biases in RCT’s and Cohort Studies | 3:30 P.M - 4:00 P.M | Dr. Soumya Rao |
| 8. Summing up Pain and Infection management lessons for Sickle Cell Disease | 4:00 P.M – 4:30 P.M | Dr.Meenal Patwardhan |
Day 2
| Breakfast - 8:30 A.M - 9:00 A.M | ||
|---|---|---|
| NGO’s participation in public forum relating to social issues | 09:00 A.M - 10:00 A.M. | |
| Boston University experience | 10:00 A.M - 10:30 A.M | |
| NRHM experience | 10:30 A.M. - 11:00 A.M | |
| Tea Break - 11:00 A.M - 11:30 A.M. | ||
| Sulabha Madam – Stress in chronic genetic disease | 11:30 A.M. - 12:00 P.M | |
| Methodology to cope up stress | 12:00 A.M. - 12:30 P.M | |
| Lunch -12:30 P.M. – 1:00 P.M | ||
| Coping Stress in: i. New Born's Parents ii. Marriageable Youth Partner Selection iii. Pregnant Mothers for Chorion Villus Sampling & Pre-Natal Diagnosis | 1:00 P.M.- 2:30 P.M | |
| Tea Break -2:30 P.M. – 3:00 P.M | ||
| Social & Psychological Issues: i. Take Home Messages ii. Guiding & Counselling Centers | 3:00 P.M - 4:00 P.M | |