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Sickle Cell Workshop – 14th & 15th December 2019

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A two day workshop on Clinical, Epidemiological, and Psychosocial issues in Sickle Cell Disease was held on 14th & 15th December at Surgical Complex Auditorium, Indira Gandhi Government Medical College, Nagpur. The collaborative partners were:

  • Global Health Unit, Boston University
  • Lata Medical Research Foundation, Nagpur
  • AMS
  • VAPM
  • Alumni Association, IGGMC
  • Sickle Cell Association, Nagpur (Org. Secretary: Dr. A. V. Shrikhande)

The schedule of the workshop was as follows.

Day 1
Registration & Breakfast - 8:30 A.M - 9:00 A.M
Welcome Address9:00 A.M.- 9:30 A.M.
Theme 1-Importance of Cohort in Sickle Cell Disease in India
Chairperson – Dr.Sushma Thakre
9:30 A.M. - 10:30 A.M.( 2 min Introduciton of speaker)
1. Cohort Studies – Methodology and biases20 minuteDr.Meenal Patwardhan
2. What have we learnt from the Jamaican Cohort Model?20 minuteDr.Meenal Patwardhan
3. What have we learnt from the Indian Cohort Model?20 minuteDr.Dipty Jain
Tea Break - 10:30 A.M - 11:00 A.M.
Theme 2- Relevance of RCT’s in Sickle Cell Disease
Chairperson – VL Gupta
11:00 A.M – 12:30 P.M
1. How do RCT’s contribute to management decisions?30 minuteDr.Meenal Patwardhan
2. RCT’s in use of Hydroxyurea.30 minuteMadam Nafisa Halim
3. Indian RCT experience in use of Hydroxyurea.30 minuteDr.Gohokar, Dr. Vinod Gandhi
4. Panel Discussion - Evidence from Cohort Studies for Pain and Infection Management in Children12:30 P.M - 01:30 P.MModerator: Dr. Archana Patel
Panel: Madam Nafisa Halim, Dr. Meenal Patwardhan, Dr. Dipty Jain, Dr. Balwant Khobragade, Dr. V. Gandhi, Dr. Gohokar, Dr. Kane.
5. Felicitation of Padmashree Dr. S.L.Kate Sir1:30 P.M. -2:00 P.M
Lunch -2:00 P.M. – 2:30 P.M
Theme 3 - Pain, Infection and Hydroxyurea Management
6.Debate on use of Hydroxyurea in sickle cell disease2:00 P.M.- 3:30 P.MModerator: Dr. Anuradha Shrikhande
For: Dr. Dipty Jain, Dr. Riya Ballikar, Dr. Manoj Bhatnagar
Against: Dr. Kane, Dr. Gohokar
7. Biases in RCT’s and Cohort Studies3:30 P.M - 4:00 P.MDr. Soumya Rao
8. Summing up Pain and Infection management lessons for Sickle Cell Disease4:00 P.M – 4:30 P.M Dr.Meenal Patwardhan
Day 2
Breakfast - 8:30 A.M - 9:00 A.M
NGO’s participation in public forum relating to social issues09:00 A.M - 10:00 A.M.
Boston University experience10:00 A.M - 10:30 A.M
NRHM experience10:30 A.M. - 11:00 A.M
Tea Break - 11:00 A.M - 11:30 A.M.
Sulabha Madam – Stress in chronic genetic disease11:30 A.M. - 12:00 P.M
Methodology to cope up stress12:00 A.M. - 12:30 P.M
Lunch -12:30 P.M. – 1:00 P.M
Coping Stress in:
i. New Born's Parents
ii. Marriageable Youth Partner Selection
iii. Pregnant Mothers for Chorion Villus Sampling & Pre-Natal Diagnosis
1:00 P.M.- 2:30 P.M
Tea Break -2:30 P.M. – 3:00 P.M
Social & Psychological Issues:
i. Take Home Messages
ii. Guiding & Counselling Centers
3:00 P.M - 4:00 P.M
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